Those magic pink pills seem to do the trick. Jimmy had a much better night's sleep and this morning his back was better than it has been in two days again. Unfortunately he has just taken the last one, so tomorrow I'm off to the pharmacy to beg for some more to last till after the long weekend, when we can get another script from Prof.
Jimmy drove through to the office today for an hour and a half to visit everyone and I think this was a mutually beneficial exercise. Of course he doesn't know, but I phoned Spencer and told him Jimmy was on his way and made him promise me that if he saw Jimmy was getting tired he would tell him to go home as the drive back is still another 45 minutes. And he left with strict instructions to let me know when he got there and when he was leaving <3
The stark reality of things.....this afternoon Michelle popped around so we can get all our ducks in a row. We have never updated our Wills since I started my 2 businesses and other things like signing a General Power of Attorney. And before any of you Sunshine Corner guys have a heart attack.... I promised Jimmy I wouldn't sell his golf clubs hehe
And then our news of the day is that we eventually got some clarity on the whole treatment authorisation situation. I phoned the medical aid at 08h30 only to be told that they still hadn't received any paperwork. Jimmy managed to get hold of the right person at UCTPAH this afternoon and it was explained that they cannot send the motivation off to the medical aid without the results of the bone marrow biopsy. These should have already been received but due to the public holidays everything is running late. They hope to get these results back on Friday (tomorrow is a public holiday) and the medical aid should start processing the authorisation on Monday. This will take approximately 2 to 3 days. Wednesday is also a public holiday so we are probably looking at starting chemotherapy the following week. How frustrating......if this had been explained to us right from the start we would not have spent the week anxiously waiting.
Well, we look forward to another lazy long weekend. My girls have gone away with Mike (their dad) and Brad and Shan are here to enjoy some special time with their dad.
And Jimmy.....he is fast asleep on the couch.....
2014/04/30
2014/04/29
Tuesday, 29th April
Today is two weeks since Jimmy was diagnosed. In some ways it feels like forever and in other ways not. I feel like this whole cancer cloud has been around for much longer than this but I think this is because his back has been so sore for so long. But then I can't believe that we are going into our third week of him being home with me during the day. He keeps talking about popping into work for a few hours (more just to visit, I think) and it doesn't happen but today he said he might pop in tomorrow and I was like....what?.... what am I going to do while you not here?? I'm sure he must be missing the work day and interaction with his staff terribly.
The good news is that today was the last 40 cortisone tablet breakfast he had to endure Yay! The other fizzy medicine is also finished. Jimmy's backache has been worse and he isn't sleeping as well as a result, so we decided to change his pills. He is on pain killers every 6 hours and he was on anti-inflammatory tablets every 8 hours. On Friday Prof changed the anti-inflammatory ones to one that is taken once a day and they don't seem to be working as well and since he still had some left, we've gone back to the pink ones. By this evening he is feeling some relief. The pain is quite strange as it seems to move around from one side of his ribs to the middle at his spine and then to the back of his hips on each side of his spine. I am wondering if this is the different lesions playing up? I am a bit weary of going onto the Internet to research Myeloma because I'm not to sure what to believe. It would be great to get a good book with all the info....does anyone have any recommendations or perhaps know someone who could recommend a good book?
We played the waiting game today. At 08h30 Jimmy was on the phone to the medical aid to find out if the authorisation for the chemotherapy has gone through, only to be told they haven't received the motivation from Prof. When we saw Prof on Friday he told us that it had already been done and we should phone this morning. So I phoned UCTPAH but didn't manage to get hold of anyone today. When I phoned the medical aid at 15h30 they still hadn't received anything. Very frustrating as I don't know who is in the wrong. The other thing is that the treatment has to be twice a week and this can only be on a Monday and Thursday or a Tuesday and Friday. Monday is gone and Thursday is a holiday (the clinic isn't open on public holidays) and today is gone and I'm not sure if they will start treatment on a Friday. So chances are we are looking at next week now.
I had a very productive day today doing financial year end for Miniature Monsters, throwing myself into figure work.....it felt very good! We had rain in Cape Town today too which was wonderful for my garden but not so good for Brush Works. Thankfully we were high pressure cleaning today so it made no difference if it was raining as my guys and everything get we anyway. The mornings and evenings are definitely getting cooler.....winter is on its way.
I would like to say thank you to each and every one of you for supporting us through this. Your thoughts and prayers mean so much. I have not commented on any of your comments because I don't really know what to say. I have mentioned before that to keep saying thank you sounds so arb but I really mean a big BIG thank you, from the bottom of my heart. I love reading your comments, you are all so brave. In fact, I read them a few times each day....they remind me that I am not losing my mind.
Well, it's 8pm and there are no school lunches to make so I am going to say good night and go snuggle up to my man on the couch with a blanket and watch a movie :)
The good news is that today was the last 40 cortisone tablet breakfast he had to endure Yay! The other fizzy medicine is also finished. Jimmy's backache has been worse and he isn't sleeping as well as a result, so we decided to change his pills. He is on pain killers every 6 hours and he was on anti-inflammatory tablets every 8 hours. On Friday Prof changed the anti-inflammatory ones to one that is taken once a day and they don't seem to be working as well and since he still had some left, we've gone back to the pink ones. By this evening he is feeling some relief. The pain is quite strange as it seems to move around from one side of his ribs to the middle at his spine and then to the back of his hips on each side of his spine. I am wondering if this is the different lesions playing up? I am a bit weary of going onto the Internet to research Myeloma because I'm not to sure what to believe. It would be great to get a good book with all the info....does anyone have any recommendations or perhaps know someone who could recommend a good book?
We played the waiting game today. At 08h30 Jimmy was on the phone to the medical aid to find out if the authorisation for the chemotherapy has gone through, only to be told they haven't received the motivation from Prof. When we saw Prof on Friday he told us that it had already been done and we should phone this morning. So I phoned UCTPAH but didn't manage to get hold of anyone today. When I phoned the medical aid at 15h30 they still hadn't received anything. Very frustrating as I don't know who is in the wrong. The other thing is that the treatment has to be twice a week and this can only be on a Monday and Thursday or a Tuesday and Friday. Monday is gone and Thursday is a holiday (the clinic isn't open on public holidays) and today is gone and I'm not sure if they will start treatment on a Friday. So chances are we are looking at next week now.
I had a very productive day today doing financial year end for Miniature Monsters, throwing myself into figure work.....it felt very good! We had rain in Cape Town today too which was wonderful for my garden but not so good for Brush Works. Thankfully we were high pressure cleaning today so it made no difference if it was raining as my guys and everything get we anyway. The mornings and evenings are definitely getting cooler.....winter is on its way.
I would like to say thank you to each and every one of you for supporting us through this. Your thoughts and prayers mean so much. I have not commented on any of your comments because I don't really know what to say. I have mentioned before that to keep saying thank you sounds so arb but I really mean a big BIG thank you, from the bottom of my heart. I love reading your comments, you are all so brave. In fact, I read them a few times each day....they remind me that I am not losing my mind.
Well, it's 8pm and there are no school lunches to make so I am going to say good night and go snuggle up to my man on the couch with a blanket and watch a movie :)