Tuesday, 18th November 2014

As you know Jimmy's motivation for stem cell transplant went in front of the committee today between 2pm and 4pm.  At 4pm Jimmy asked me if he should phone and find out if there is any news.  I told him I didn't think he would get through as I was sure they closed at 4pm.  Anyway, he tried and got no answer.

Not 5 minutes ago his cell phone rang and it was Mrs Viljoen from the medical aid to say that she thought she would phone and let us know that they had just got out the meeting and stem cell transplant has been approved.

STEM CELL TRANSPLANT HAS BEEN APPROVED

 

 

 

 

This is the same lady who organised the injections for us through the pharmacy at Panorama Hospital.  Nice to know that there are people who really care and not just doing their job.

 

She is going to let Ilhaam/ Prof Novitzky know in the morning and I will update again once we know more and when the whole 6 week process starts.

 

Thank you so much for all your prayers and positive thoughts.

 

 

And last but not least, wishing my Mom and Dad a happy 47th wedding anniversary today.

Monday, 17th November

The days and weeks have really been dragging....I constantly feel like we are living in limbo.

Since last I updated, the stem cell transplant motivation with Jimmy's bone marrow biopsy results have been re-submitted to the medical aid.  I had one of those gut feels on Friday and thought we were going to get some news but nothing.  Last night I got into bed and was thinking about the week ahead and it's as if a calm has come over me.  I know we will be getting an answer this week and a plan will be laid out for Jimmy.  I believe that the best decision will be made and we will be able to move forward and have some positive results.

While I am typing Jimmy phoned through to the medical aid and the motivation is going in front of the panel tomorrow afternoon from 2pm to 4pm.  Hopefully well have an answer on Wednesday morning.

The kids are all still busy with final exams so they were studying this weekend.  It was Shannon's 18th birthday on Saturday.  It makes it very difficult with Jimmy's blood counts being so low and the fact that we can't go out.  So Shan spent the day with her mom on Saturday and then on Saturday evening we booked a table at the Toad for the girls to go out for dinner and Shan had her first legal drink.  They ended up getting a group of friends together so I think it turned out alright and a good time was had.  We didn't end up seeing much of Shannon on her birthday and only had birthday cake on Sunday but we will have to make it up to all the kids next year on their birthdays when we can enjoy the outing together.

Technology is so amazing.  I have been following a blog called Julie's Myeloma and after months of just following I decided to comment on her post.  If you noticed the comment at the bottom of my blog last Monday you will see it is from Julie.  Amazing to think that we can become friends from two different ends of the world, have something so devastating in common and even more strange is that her husband's name is Jim.  Julie had her stem cell transplant in 2010.

Well, hopefully I will be back blogging on Wednesday with some important news...