Tuesday, 6th May

What a day of being at the mercy of other people!

I phoned the Haematology and Chemotherapy Clinic first thing this morning to tell them that Jimmy's painkillers are going to run out today.  I have also been doing a bit of reading up on Multiple Myeloma and have come to understand that the pain experienced from lesions and/or fractures needs to be controlled so that it is manageable.  Jimmy's pain is definitely not manageable so I asked them to please prescribe something stronger.  I also explained that he has a cold with a cough and each time he coughs he wants to climb the walls in pain.  The script that came through was for exactly the same medication as before and nothing for his cold.

The garage door people are only coming on Thursday to repair the springs.  Do they have any idea how heavy our solid wood, double garage door is to open manually?

Oh well, no use dwelling on the negative.  I popped down to the pharmacy to pick of the meds and they gave me something to suppress Jimmy's cough as well as a gel to rub on his gums as his mouth is full of sores.  I also bought him 3 more pairs of tracksuit pants as his are way too big now.

Jimmy has been a bit down today.  He is in allot of pain and I think he is just gatvol of a sore back, sores in his mouth, sore ribs and the constant waiting for treatment to start.  He had a really bad night last night, we didn't go to sleep till the early hours of this morning.

We are looking forward to making our mark tomorrow and voting for a better South Africa.  We even have a wheelchair so that a long queue won't be a problem and this year we have 3 of our children who are old enough to vote!  I remember voting in 1994, standing in the queue with Megan as a baby in her pram.....and now she is 21.